Anyone with Hidradenitis Suppurativa will tell you how hard it is to get behind getting busy with someone new. It’s a damned nightmare. There’s always this fear in the back of your mind that your partner will take one look at your bump-n-lumps and run screaming for the hills. It’s not a good feeling.
Hubby and I started off with an online relationship. We lived on entirely different coasts. Luckily, with that distance between us, I could manipulate the narrative about my body. If I showed him anything, it was by picture or video. Super easy to hide the places I hated. My armpits, under my breasts, and my groin were all a war-zone back then, so I kept them well hidden at all times.
I was excited to see him in person for the first time. But I was also scared out of my mind. I told him I had a skin problem but glossed over how bad it really was. Thankfully, he is a very understanding person and we had no problems in the bedroom.
Even with him being understanding, I still freak out occasionally, but I think it’s an understandable feeling. I feel gross way more often than I feel sexy. Sometimes it puts me off sex, especially when the HS is really flaring up. It’s the absolute worst.
I’ve been with the same person for over 16 years, so I haven’t had to worry about the “someone new” aspect of HS for many moons. However, if I had to (like if Sweet Hot Thor comes a-knocking) this is the advice I’d give myself.
Only date someone who makes you feel comfortable.
One of the most important things in any relationship is to find someone you can be your truest self with. If you can’t, then it might just be time to move on.
Make sure you tell them about your condition before you hit the bedroom.
Having someone reaching down your pants is not when you want to drop the HS bomb. Way before you get to that stage, be open and honest about your condition. Hey, as uncool as HS is, there is no shame in it. It’s not something you can control and it’s a part of who you are. You may hate it, but you’re going to have to own it. Control the narrative before it controls you!
Don’t be afraid to give them research material
There are plenty of resources out there explaining hidradenitis suppurativa. Get together with your lover and show them what it’s all about. Understanding is key. Plus, this way your special person can get an idea of what they could possibly do to help you. My husband has been instrumental to me dealing with HS.
Take your time. There’s no rush!
Hey, only do things you’re ready for. If you’re in a relationship where someone is trying to push it too quickly, stand up for yourself. If that person can’t wait, well, they can go find someone else. You’re worth the time and if they don’t get that, then they can move the hell on.
Remember you’re a hot piece of ass no matter what condition you have
Yeah, that’s right. I’m talking to you. You are amazing and there is something about you that is more brilliant than the sun. HS is a small part of your life. The rest of you is what’s important. Don’t let HS hold you back!
You Won’t Go Through This Alone!
Don’t be afraid to tell your loved one about this aspect of your life. Yes, it sucks. There are miserable days sometimes that make you feel like the least sexy thing in the world. Just remember, while it may affect your life, HS is just a very obnoxious hurdle. Find someone who will go on the journey with you. And if your person doesn’t want to go with you, it’s time to pack up and leave them behind. You deserve only the best.
Until next time, my friend. Keep your Mind in the Gutter!